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Antiphospholipid Syndrome (or Hughes Syndrome as it is also known) is an illness that it is not well understood by doctors, let alone patients as yet. Kay Thackray's first book: 'Sticky Blood Explained' attempted to demystify the illness, as few existing books were aimed at the ordinary person with antiphospholipid syndrome. Many common symptoms were not discussed in print elsewhere and many people bought extra copies of the book for their doctor or family to increase their understanding. In this second book the author has tried to continue to explain all that she knows and understands about this disorder in a friendly and accessible way. So much changes so quickly with an illness that is only 20 years old and new discoveries are made and need to be passed on to those who live with Hughes Syndrome. It is a continual process learning about this illness, and Kay speaks to many people including Dr Graham Hughes, the man who Hughes Syndrome is named after, and fellow patients. It is all too easy to use technical terms and sound super-intelligent, the problem is that only a select few will understand! The author has found that writing in the same way that she talks to people gets the message across and simplifying facts that are hidden in complicated medical reports is appreciated by many! The book also covers the author's own life and challenges which allow her to understand and empathise with the reader, because she has been there. "I know my writing helps many to cope with this terrible illness because they tell me so and that gives me more pleasure than I can tell." Kay Thackray |
